The RARE Foundation, formerly known as the EveryLife Foundation for Rare Diseases, is powered by the rare disease community and works to improve health outcomes by advancing equitable policy, accelerating science-driven research, and activating advocates to lead change together.

Runners in the 2026 TCS New York City Marathon are proudly running in honor of—and alongside—the rare disease community, representing the 30 million Americans living with a rare disease. With every mile, they help amplify rare disease voices and fuel the advocacy and research efforts that move the community forward.

Thank you for supporting these runners and standing with the rare disease community. Your generosity strengthens this collective movement and helps turn courage, commitment, and community into lasting impact.