A MESSAGE FROM Maeve
I'm very excited to be running the 2026 New York City marathon with National Organization for Rare Disorders (NORD)! NORD serves as a resource for rare disease patients by connecting them to diagnoses, specialists, and clinical trials. Rooted in decades of advocacy, NORD continues to fight for life-changing laws, policies, and programs that benefit the rare disease community, collectively serving more than half a million patients. This year I am running the NYC marathon for my community partner and friend, Kristen, who is living with Ehler's Danlos Syndrome (EDS), a rare genetic condition affecting connective tissues. This will be my 13th marathon and first time running the NYC marathon and I can't wait to run with such a great team and community partner! Please consider donating to my marathon fund to support NORD's mission to improve the health and well-being of people with rare diseases!
