A MESSAGE FROM Team LowPheoTheo
Please support my fundraising efforts for the 2026 TCS New York City Marathon. No donation is too small. Please click on the donate button!
My son Theo is 7 years old and one of the most determined kids I know. He was born with phenylketonuria (PKU), a rare metabolic disorder that means his body cannot process the amino acid phenylalanine. Because of this, Theo has had to follow a strict low-protein diet his entire life and relies on specialized medical foods to stay healthy. He can currently eat 13 grams a day. For reference, one egg has 7 grams!
While most kids don’t think twice about what’s on their plate, every meal for Theo requires planning and care. Despite these challenges, he shows up to life with incredible resilience, curiosity, and joy. He loves being active, cheering people on, and reminding us that obstacles don’t have to define what we can achieve.
That’s one of the reasons I decided to run the New York City Marathon in support of the National Organization for Rare Disorders (NORD). NORD works to support families like ours and helps drive research, awareness, and advocacy for rare diseases like PKU.
Every mile I run is for Theo and for the thousands of families navigating life with rare diseases. Your support helps fund critical programs, research, and resources that give families hope for better treatments and brighter futures.
Thank you for being part of Theo’s story.
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